Thursday, September 22, 2011
As I was looking over my blog I realized that since my last post, I have had a birthday, started aquatic therapy, have a new diet plan and I am receiving new equipment to help me have some independence. The one thing that is funny though is my blog still says I am 12. I only wish, so far 13 hasn't been that great. But as mom says, "It can only get better". :)
If you are in the St. Louis area, check out OohLaLa! They are donating 15% of their proceeds from their four day sale to Children's Miracle Network Hospitals. Come on out and enjoy!
Saturday, August 13, 2011
I also was greeted by my favorite reporter, Amy Huff, of the Current Magazine. She is absolutely awesome and funny. I am always happy to do an interview with her. Oh yeah, Amy, you forgot your signature. LOL Amy took the fabulous picture of me making a cone.
Thank you for helping kids like me!
Saturday, July 16, 2011
Representing SSM Cardinal Glennon Children's Medical Center
Danielle '06, Christopher (ME) '09, Greta '10, and Josh '07
(not pictured but in attendence- James '11 and Haley '08)
This year was the first year I could participate in A Walk in the Park. In previous years, this has been a cancer patient only event. I ended up raising approximately $137.00. Which wasn't bad for my first year. It was great to see all my friends and hang out this morning, but the weather in St. Louis is miserable so I didn't stay at the park for the day.
Thursday, June 30, 2011
Monday, June 27, 2011
Monday, June 20, 2011
I will be there in the afternoon to help raise awareness for Children's Miracle Network Hospitals. I hope to see everyone there.
Chipping in for Children 2011 was a great event. I had a wonderful time getting to know all the sponsors and doing a great deal of photo ops with all of them. I cannot wait to get the photos back from Phil to post on here for everyone to see. I received two really fun items from the vendors, a Oreo #8 blow up racecar and the Pillsbury Doughboy Keychain. It is so much fun to squeeze his tummy.
The golfers looked like they had a wonderful time. I met a great deal of wonderful people. I hope next year is just as great if not greater.
Wednesday, May 25, 2011
Today, I finally made it to one of my favorite Wal~Mart's, THE WASHINGTON MISSOURI WAL~MART! It was fun to see Rachel and Amanda again. We plan on having some kind of fundraiser this summer for Children's Miracle Network Hospitals. I always enjoy going to see them.
But today was very different. I am so use to that Wal~Mart being SUPER busy all hours of the day. Today it wasn't. The weather man has predicted tornadoes for our area until late tonight. After the devastating loss in Joplin, MO, I think everyone is finding a safe place to be. So while I was out having fun with my Washington Wal~Mart, I am also reminded of my duties as being Champion for the State of Missouri.
Freeman Health System is a Children's Miracle Network Hospitals. It is the only full functioning hospital in Joplin at the moment (according to what little news we get). The citizens of Joplin are enduring great loss and devastation. So please, please make a donation to Freeman Health Systems through Children's Miracle Network Hospitals. Right now their Wal~Mart Campaign would be taking place, but their Wal~Mart is completely gone. I can't even begin to imagine an entire Wal~Mart there one day and the next day POOF it is gone.
Please pray with me for all those effected by the tornadoes and for the tornadoes to subside. Also, please make a donation with me to Freeman Health System a Children's Miracle Network Hospital.
Sunday, May 15, 2011
Monday, May 9, 2011
May is for Miracles Radio Broadcast
93.7 The Bull- Mason, Dusty & Remy, Rewind 103.3 Cindy & Greg
Children's Miracle Network Hospitals of Greater St. Louis Ambassadors representing SSM Cardinal Glennon Children's Medical Center: Greta (2010), Josh (2007) with my little sister Cassandra on his back, & Me (2009)
May is for Miracles!
Please tune in on Wednesday, May 11 from 6am to 6pm as Clear Channel Radio 93.7 THE BULL and Rewind 103.3 broadcast live from my favorite place in St. Louis! Yes, you guessed it! SSM CARDINAL GLENNON CHILDREN'S MEDICAL CENTER!!! Please call 1-800-432-4KID or go to http://www.cmn-stl.org/ to make your pledges. We need your help! Then tune in again on Thursday, May 12 from 6am to 6pm as they broadcast live from St. Louis Children's Hospital.
I love radiothon from Glennon each year. We always have a great time. This will be the forth time I have broad casted live from Glennon. My first year was 2007, and I was a little nervous but I got over it quickly. Because by 2009, I was having fun with the radio personalities, answering phones and talking with all the volunteers. During my 2009 Ambassador year, there was one patient at Glennon that was walking between appointments that I was able to race cars with in the atrium. If you haven't seen the atrium at Glennon, you truly are missing something spectacular. It makes is feel like home, not a stuffy old hospital.
I have just learned some news via Facebook. I have come full circle with Radiothon. When I started as a shy little boy, my broadcaster was Cindy Collins. With the change up to Radiothon, and the new radio stations, I will see Cindy Collins again. It will be comforting to have a friendly face at Radiothon.
Everyone tune in! I will be there.
(I will update Wednesday night with pictures and posts about the day.)
Tomorrow is going to be an adventure as I make the rounds to three different Wal~Mart's to help promote the National Wal~Mart Campaign here in Jefferson, Washington and St. Francois Counties. My morning will start at DeSoto at approximately 10:00 am. Thank you Mom for allowing me to sleep in a little tomorrow. (I don't get to sleep in on Wednesday!) Then I will be off to Potosi and my final destination will be Desloge. Each of these Wal~Mart's did great things for Children's Miracle Network Hospitals. I am really honored and proud to say I get to go and see their wonderful employees. Two of these Wal~Mart's are in really remote areas, and they are doing BIG things for children like me.
So I will be awarding Wal~Mart #0152 of DeSoto their certificate with their 2010 fundraising total on it. They did $3686.00. Woo Hoo! Way to go DeSoto! Then off to Wal~Mart #0173 of Potosi to award them their certificate! They raised $1,127.00. I am really proud of them, especially with what the unemployment rate is down there. It really shows the big hearts that are in Potosi. My final stop is Wal~Mart #0095 of Desloge with a grand total for 2010 being $6324.00. All I can say is WOW! Each of these Wal~Marts are very special to me in their own ways. Most the time they don't even realize when I come to visit. It isn't often, but I do visit them quite a bit. Thank you Wal~Mart! Thank you! Thank you!
I will see you TOMORROW!
(I will post pictures and updates tomorrow night after I return from making the rounds.)
Then I was off to Potosi. Now usually when I am in Potosi, I am getting ready to head to the Starlite Drive-In located near Cadet, MO. One time when we were heading to the movies, I actually SAW my poster in their store! Yes, my poster was that far south in Potosi. I didn't realize they were in our area in 2009. So you can only imagine my surprise when I saw my promotional poster in their store back then. I knew this Wal~Mart had to be special. (The 2011 Local Ambassadors' promotional poster is up in their store now and it looks nice.)
Saturday, May 7, 2011
This picture isn't the best, but it is better than nothing, for now.
So please buy a Creating Miracles Charm Bracelet retails for $20 with $10 going back to the local Children's Miracle Network Hospitals. These beautiful bracelets are available at Chico's, White House Black Market, and Soma Intimates. You can also purchase them online from each of these retail stores.
Tuesday, May 3, 2011
Well do I have the perfect event for you. Please visit the following website: www.cmn-stl.org/take-action/events/race-miracles-family-5K-runwalk . It should be great fun. Plus everyone will get a great laugh out of my little sister trying to push my wheelchair during the walk. She is a little too small to see over the wheelchair. I wonder how long it will take before mom takes over. Any ideas? I hope to see everyone out there.
-- Christopher --
Tuesday, April 26, 2011
The Champions program designates a child in every state who has bravely battled a serious injury or illness. The Champions represent the nearly 17 million children treated at Children’s Miracle Network Hospitals every year. The 2011 Champions have dealt with a wide variety of injuries and illnesses including genetic diseases, organ transplants and traumas, as well as various types of cancer.
The Champions travel for a week in October, first to Washington, D.C., where they traditionally meet with their state senators on Capitol Hill, and the President of the United States during a visit to the White House. They then take a private chartered flight, provided by Delta Air Lines, to Orlando, Fla. There, champions meet Children’s Miracle Network Hospitals sponsors, hospital representatives and media partners who all convene to celebrate a year of medical miracles during the Children’s Miracle Network Hospitals Celebration event at Walt Disney World Resort.
Friday, April 22, 2011
This blog is to help anyone and everyone who would like to come along for my journey as Children's Miracle Network Hospitals 2011 Champion for Missouri. I am looking forward to an exciting year representing not only all the children in the state of Missouri, but also representing my wonderful hospital: SSM Cardinal Glennon Children's Medical Center.
My year will officially start on May 17, 2011 at 10:30 am at the Wal~Mart #069 Festus, Missouri. If you are in the Festus, Missouri area, please plan on attending. I would enjoy seeing everyone there.
650 South Truman Blvd
Festus, MO 63028
I would like to thank everyone who has supported, is supporting, and will support Children's Miracle Network Hospitals. Without your support and donations these wonderful hospitals could not accomplish what they do to help all children everywhere, especially children like me!
Thursday, April 21, 2011
SSM Cardinal Glennon Children’s Medical Center
Rare Brain Infection- Chronic Inflammatory Demyelinating Polyneuropathy
It started one day when Christopher experienced blurred vision and loss of depth perception. Christopher’s mom took him to Cardinal Glennon Children’s Medical Center. Simple optical solutions seemed to be the cure until one month later when Christopher lost all peripheral mobility and nerve functions. A few months after that, Christopher woke up unable to walk.
A year of spinal taps, testing and hospital stays resulted in a diagnosis: Chronic Inflammatory Demyelinating Polyneuropathy, an extremely rare disease of the brain that destroys protective coating around the nerves. Without this protective coating, nerve impulses slow or stop. At the time of his diagnosis, almost nothing was known about the disease. However, doctors at Cardinal Glennon Children’s Medical Center took on the challenge of finding a cure for Christopher.
Treatment has sometimes been trial and error. Christopher’s condition changes on a daily basis. Sometimes he finds himself needing a wheelchair or walker, while other times he can run and walk. Despite the uncertainty of his illness, Christopher lives his life determined to accomplish the things he needs to get done despite any obstacles he may have to overcome.